Non-reimbursed Optune treatment, immunotherapy

My name is Łukasz, I am 42 years old. I am a happy husband and father of two wonderful children – Ala and Bartek. I work in a profession that I like and I am fulfilled in family life. Unfortunately, my life changed drastically at the end of June 2024, when I was diagnosed with malignant glioma stage IV.

It all started with severe headaches that didn't go away despite taking medication. On June 24, I ended up in hospital in Wrocław with dizziness and vision problems. A CT scan showed a brain tumor, which was confirmed the next day by MRI. On July 10, I underwent emergency surgery to remove the tumor from my right frontal lobe. The tumor was five centimeters and was removed in its entirety, but the surgery was a big challenge, carrying the risk of serious neurological disorders.

The final diagnosis – malignant glioma stage IV – was a huge blow to me. Now I am waiting for radiotherapy and chemotherapy in Bydgoszcz, but the standard and reimbursed treatment in Poland ends there. Glioma is a very aggressive brain tumor, which most often returns, and its recurrence can occur quickly and in an inoperable place.

I don't want to wait for the worst - I want to live! After many medical consultations, I decided to continue the treatment, which gives me hope for a better future. The first step is TTFields Optune therapy - a device that generates electromagnetic fields that disrupt tumor growth and cause cancer cell death. This is a standard treatment method in Germany, Switzerland and the USA, but it costs about PLN 130,000 per month, and the device must be worn for at least 6 months.

The next step will be immunotherapy in Germany. The costs of treatment are enormous and I have little time. I want to fight for my life, not only for myself, but above all for my family. My children – 4-year-old Bartek and 9-year-old Ala – need a father. I don't want to be another person in the terrifying statistics. I know that there are cases of long-term survival of people with such a diagnosis and I want to be an example of that!!

I have a tough fight ahead of me with an unequal opponent, but with your help I can defeat him. Please help me with this!

 

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