{"id":71124,"date":"2025-08-25T09:44:00","date_gmt":"2025-08-25T07:44:00","guid":{"rendered":"https:\/\/fundacjarakiety.pl\/podopieczni\/inna-bezroda\/"},"modified":"2025-12-29T18:37:43","modified_gmt":"2025-12-29T17:37:43","slug":"inna-bezroda","status":"publish","type":"beneficiaries","link":"https:\/\/fundacjarakiety.pl\/en\/podopieczni\/inna-bezroda\/","title":{"rendered":"Living with an incurable disease"},"content":{"rendered":"<p style=\"text-align: center;\">When I was 26 and had just given birth to my first child, I began experiencing occasional migraines with aura and weakness. Eventually, I had a complete blood count done, which revealed an elevated platelet count. A search began to determine the cause of these abnormalities, and I was eventually referred to the Institute of Hematology in Kyiv, where I was diagnosed with the condition in 2013. <strong>polycythemia vera<\/strong>.<\/p>\n<p style=\"text-align: center;\">Over the past 12 years, I&#039;ve gone through various stages of treatment. Initially, I was treated with short-acting interferons, which didn&#039;t achieve the desired bone marrow suppression. Next, I tried chemotherapy with cytotoxic drugs, but I tolerated them very poorly. Later, I was introduced to long-acting interferons, which produced better results. Unfortunately, due to the outbreak of war in Ukraine and the lack of access to treatment, I was forced to leave the country. Over the past year, I&#039;ve had the opportunity to benefit from state-of-the-art treatment methods, for which I am incredibly grateful to Polish doctors.<\/p>\n<p style=\"text-align: center;\">My disease is incurable, but with appropriate treatment, I hope to live a long, possibly normal life. The therapy is lifelong and requires regular monitoring of blood parameters. In addition to the reimbursed main medication,<strong> I regularly take other medications at my own expense<\/strong>Due to the serious <strong>I also need a diagnosis and consultation with specialists such as a cardiologist, psychiatrist or endocrinologist<\/strong>which we cannot always afford because only the husband works in the family.<\/p>\n<p style=\"text-align: center;\">My children, husband, parents, and friends give me strength to live. Travel, even just for a day, helps me cope with my illness. I enjoy learning about the history of cities, visiting museums, and taking photos; it gives me energy and hope.<\/p>\n<p style=\"text-align: center;\"><strong>Thank you in advance for any support!<\/strong><\/p>","protected":false},"excerpt":{"rendered":"<p>I was diagnosed with polycythemia vera. The disease is incurable, and treatment is lifelong and expensive. Despite this, thanks to the support of my family and my passion for travel, I find the strength to live with hope for a normal life. Thank you for all your support!<\/p>","protected":false},"author":21,"featured_media":71123,"template":"","meta":{"page_title":"\u017byj\u0105c z nieuleczaln\u0105 chorob\u0105","first_name":"Inna","last_name":"Bezroda","name_variation":"Inna","funds_collected":150,"funds_target":20000,"currency":"z\u0142","left_on_the_subaccount":150,"refunded_expenses":0,"collection_on":"leki, wizyty u specjalist\u00f3w, badania","content_update":"","number_pln":"52 1050 1025 1000 0090 3010 4252","number_usd":"PL54 1050 1025 1000 0090 8058 1367","number_eur":"PL32 1050 1025 1000 0090 8058 1375","number_gbp":"PL76 1050 1025 1000 0090 8058 1359","swift":"INGBPLPW","transfer_title":"Inna Bezroda","recipient_details":"Fundacja Onkologiczna Rakiety, ul. Stryje\u0144skich 19 lok. U21\/21A, 02-791 Warszawa","krs":"0000414091","tax_specific_target":"Inna Bezroda","fundraiser_iri":"\/api\/public\/fundraisers\/809"},"beneficiary_categories":[176],"class_list":["post-71124","beneficiaries","type-beneficiaries","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/fundacjarakiety.pl\/en\/wp-json\/wp\/v2\/beneficiaries\/71124"}],"collection":[{"href":"https:\/\/fundacjarakiety.pl\/en\/wp-json\/wp\/v2\/beneficiaries"}],"about":[{"href":"https:\/\/fundacjarakiety.pl\/en\/wp-json\/wp\/v2\/types\/beneficiaries"}],"author":[{"embeddable":true,"href":"https:\/\/fundacjarakiety.pl\/en\/wp-json\/wp\/v2\/users\/21"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/fundacjarakiety.pl\/en\/wp-json\/wp\/v2\/media\/71123"}],"wp:attachment":[{"href":"https:\/\/fundacjarakiety.pl\/en\/wp-json\/wp\/v2\/media?parent=71124"}],"wp:term":[{"taxonomy":"beneficiary_categories","embeddable":true,"href":"https:\/\/fundacjarakiety.pl\/en\/wp-json\/wp\/v2\/beneficiary_categories?post=71124"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}