12 years ago, after losing a child, it turned out that I had bad cytological results. Highly oncogenic cells were detected. I underwent 3 surgeries. Later, I regularly went to the gynecologist every 9-12 months. Unfortunately, COVID meant that access to my gynecologist was limited. I decided to go to the doctor in...
my city. There were 2 doctors in the hospital. I wanted to go to a gynecologist coming from a clinical hospital in Pozna\u0144. I heard that you only accept pregnant women. The rest had to settle for an 80-year-old district doctor. I went. While receiving the cytology result, I heard from the nurse,
that I should frame this result because I had a "1" cytology result. I was surprised, because I had had "triples" for years and a more thorough examination had always been necessary. Today I know that such a result means a poorly performed cytological test.<\/p>\n
The following year, i.e. in August 2021, the situation repeated itself - cytology was one, and the doctor did not find anything disturbing during the examination. I was concerned - could it be a miraculous healing? I decided to go privately to a gynecologist who works in Pozna\u0144. In the meantime, I was looking for the cause of elevated liver parameters and liver pain. On October 5, 2021, I went for an abdominal ultrasound at a hospital in my city. I found an equally old doctor. Diagnosis: everything is fine, healthy as a fish.<\/p>\n
A week later, I was joking at my gynecologist appointment about my miraculous healing. While doing the ultrasound, the doctor suddenly became silent and turned blue... I turned my head towards the screen and saw huge tumors on the ovary! I was referred to an oncology clinic. I thought: maybe it's benign, maybe cysts,
maybe the second ovary and uterus will be saved...<\/p>\n
A computed tomography scan showed the penultimate stage of cancer - dozens of tumors spread throughout the abdominal cavity. The largest metastasis was on the uterus - 5x7 cm, on the liver 4x3 cm and 10 others of the same size scattered throughout the abdomen. There were also infiltrates in the large intestine (I was at risk of having a stoma).
on my bladder (I was at risk of having a urostomy). I can't believe the doctors didn't notice the tumors... half of my life was stolen...<\/p>\n
In November, I underwent surgery, during which unfortunately it was not possible to remove all the tumors. Doctors cut an artery while trying to remove a tumor in his liver. They had a problem with sewing it up, I got blood, my parameters were dropping... That's why the surgery was ended. My life was saved. Everything possible was removed from my stomach: ovaries, uterus, appendix, greater omentum. I managed to avoid having a stoma.
Then surgical menopause began\u2026<\/p>\n
Diagnosis: high-grade serous ovarian cancer <\/strong>advanced stage<\/strong><\/p>\n I was devastated - not only was this type of cancer at such a young age, but it was also very malignant and in an advanced stage... I was trying not to get cervical cancer, but ovarian cancer developed under the doctors' noses. I received 6 double infusions of chemotherapy and 13 infusions of maintenance medication. However, just three months after finishing chemotherapy, the marker began to increase until it exceeded the norm. The CT scan showed a lesion between the liver and the diaphragm. I was devastated\u2026<\/p>\n I wanted to undergo surgery in Bia\u0142ystok. The doctor asked for an additional PET scan (cost PLN 6,900). When I read the description, I couldn't believe what I was seeing. The examination showed the spread of the cancer almost throughout the body, including the lymph nodes. I can't understand it... If the tumors had been detected sooner, the disease would not have been so advanced. It's hard for me to come to terms with this. I am undergoing another cycle of chemotherapy. I get two types of chemo. Unfortunately, I became allergic to one of them. Doctors have to give me desensitizing drugs so that I can take chemotherapy.<\/p>\n To make matters worse, I was bitten by a tick nymph and Lyme disease has become one of the diseases I fight against. I'm not going to give up. After finishing chemotherapy, I would like to receive an anticancer drug - an inhibitor I want to do an HRD test (homologous recombination gene disorder test). This test is needed for the latest treatment of ovarian cancer. Unfortunately, the National Health Fund reimburses this test only for beginner patients. The cost of such a test is PLN 8-12 thousand. I found a center that will do this test for PLN 8,000. If I want to be treated with the most modern therapy available in our country, I have to pay for these drugs and tests myself.<\/p>\n I know that I want to live, I have someone to live for and I want it with all my strength. I don't have children, but I have relatives whom I love very much. They suspect colon cancer in my father. He is undergoing tests, we are waiting for histopathological results. I can't imagine another person in my family suffering from cancer. This would be too much. I have a long and very difficult road ahead of me. After 2 years, my savings have run out and I need funds for non-reimbursed tests and medications. Unfortunately, I cannot afford to cover all the costs myself, so the fundraiser and your support are my last hope.<\/p>\n I want to thank everyone for their help and repay the good that has happened to me from you. I would like to continue helping as a volunteer. But for this to happen, I must have a chance at life... My name is Agnieszka and I have been fighting an unequal battle with ovarian cancer for two years. Please help me raise money for a non-reimbursed medicine - my life has been valued at PLN 400,000 a year. I am begging you, help me beat cancer. A non-reimbursed medicine may help me.<\/p>\n <\/p>","protected":false},"author":21,"featured_media":67684,"template":"","meta":{"page_title":"Pom\u00f3\u017ccie mi w ko\u0144cu wybudzi\u0107 si\u0119 z tego koszmaru","first_name":"Agnieszka","last_name":"Rusiak","name_variation":"Agnieszka","funds_collected":55030.66,"funds_target":365000,"currency":"z\u0142","left_on_the_subaccount":48,"refunded_expenses":54982.66,"collection_on":"nierefundowany lek","content_update":"Aktualizacja z dnia 12.03.2025<\/b><\/br> Tomograf komputerowy wykaza\u0142 remisj\u0119<\/strong>. Olaparib dzia\u0142a i oby dzia\u0142a\u0142 jak najd\u0142u\u017cej. Lek jest ju\u017c refundowany, wi\u0119c nie musz\u0119 za niego p\u0142aci\u0107. Z miesi\u0105ca na miesi\u0105c mam coraz wi\u0119cej si\u0142, jednak wci\u0105\u017c mierz\u0119 si\u0119 ze skutkami ubocznymi leczenia \u2013 anemi\u0105, leukopeni\u0105, neutropeni\u0105, osteoporoz\u0105, zmianami neurologicznymi.<\/p>\r\n Ze wzgl\u0119du na s\u0142ab\u0105 odporno\u015b\u0107 konieczne jest sta\u0142e wspieranie organizmu<\/strong>. Ca\u0142y czas korzystam z suplement\u00f3w, rehabilitacji oraz mam specjaln\u0105 diet\u0105 antynowotworow\u0105. Jestem pacjentk\u0105 PUM w Szczecinie i bior\u0119 udzia\u0142 w programie obni\u017caj\u0105cym st\u0119\u017cenie metali ci\u0119\u017ckich. Leczenie przynosi efekty. W czerwcu kolejne badanie TK i oby by\u0142o r\u00f3wnie dobre.\u00a0<\/p>\r\n Dzi\u0119kuj\u0119 za wsparcie <3<\/strong><\/p>\r\n \u00a0<\/p> Tabletki dzia\u0142aj\u0105, rak w remisji, w\u0142osy \u0142adnie odrastaj\u0105\u2026 min\u0119\u0142o p\u00f3\u0142 roku brania tabletek. Szcz\u0119\u015bcie trwa\u0142o zbyt d\u0142ugo? Znowu musz\u0119 walczy\u0107 z systemem, aby \u017cy\u0107\u2026<\/p>\r\n Na oddziale onkologicznym zmieni\u0142a si\u0119 pani ordynator, kt\u00f3ra wprowadzi\u0142a wiele zmian. Sol\u0105 w oku sta\u0142y si\u0119 pacjentki przyjmuj\u0105ce tabletki Olaparib w ramach RDTL (ratunkowy dost\u0119p do technologii lekowych). Zrozumia\u0142am, \u017ce uwa\u017ca, \u017ce ten lek nie nale\u017cy mi si\u0119, cho\u0107 mam mutacj\u0119 w genach oraz zasugerowa\u0142a, \u017ce poprzedni ordynator nie wiedzia\u0142 co podpisuje. Poza tym stwierdzi\u0142a, \u017ce lek ma zbyt wiele skutk\u00f3w ubocznych, a i tak nie wyd\u0142u\u017cy mojego \u017cycia. Lepiej, abym go nie przyjmowa\u0142a.<\/p>\r\n Dw\u00f3ch innych profesor\u00f3w, u kt\u00f3rych konsultowa\u0142am si\u0119, nie zgadza si\u0119 z t\u0105 opini\u0105. Uwa\u017caj\u0105 ten lek za bardzo pomocny w leczeniu. Niestety nie mog\u0119 przenie\u015b\u0107 si\u0119 do innego szpitala. Jedyne co mog\u0119 zrobi\u0107, to p\u0142aci\u0107 za lek 100% ceny i czeka\u0107 a\u017c b\u0119dzie dost\u0119pna jego refundacja w standardowym leczeniu dla os\u00f3b takich jak ja - po wznowie.<\/p>\r\n Koszt jednej dawki to oko\u0142o 26 tysi\u0119cy z\u0142otych. A zosta\u0142o ich do przyj\u0119cia jeszcze 14\u2026<\/strong><\/p>\r\n W zwi\u0105zku z tym ponownie z ca\u0142ego serca prosz\u0119 Was o pomoc w tej nier\u00f3wnej walce.<\/p> Badanie HRD zrobione prywatnie potwierdzi\u0142o mutacj\u0119 genetyczn\u0105. Dzi\u0119ki temu Agnieszce uda\u0142o si\u0119 zakwalifikowa\u0107 do programu lekowego w ramach ratunkowego dost\u0119pu (RDTL), dzi\u0119ki kt\u00f3remu na ten moment ma refundowane leczenie inhibitorem PARP \u2013 olaparibem. Od p\u00f3\u0142 roku jest stabilizacja choroby, cho\u0107 leki bardzo niszcz\u0105 szpik i krew.<\/p>\r\n Po ustabilizowaniu wynik\u00f3w krwi czekaj\u0105 j\u0105 konsultacje z lekarzami w sprawie operacji usuni\u0119cia guz\u00f3w. Obecnie podstawowe koszty, kt\u00f3re ponosi to rehabilitacja, suplementy diety i dojazdy.<\/p>
PARP. Unfortunately, the National Health Fund reimburses this drug only to people after the first line of treatment, and not after the second. The annual cost is PLN 400,000! This amount is beyond my capabilities. In addition, there are the costs of rehabilitation and supplementation - up to PLN 4,000-7,000 per month. I am on a modest pension.<\/p>\n
Please help me fight for my life.
Aga<\/p>","protected":false},"excerpt":{"rendered":"